On April 25, 2012, Ms. Ana Mae Villamor and Ms. Rose
Garces represented HAPI-C during the Philippine Alliance of Patients' Organizations (PAPO) general assembly in Pasay city, Manila. Also present were Ms. Boots Magsusi
and Mrs. Mayette Charvet of HAPLOS-Manila. During the forum, Ms. Villamor
raised a question to the PAPO board on what steps the hemophilia organizations
should make in order for the term hemophilia to be recognized and constituted
in the Philippine law as an inherent bleeding disorder. The goal is to have diagnosed patients be
recognized as part of the People with Disabilities (PwD) community in order to
avail of their benefits as to compensate for lack of government subsidy for
hemophilia treatment and care.
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