DYSS A.M. Radio Broadcasting for Hemophilia Awareness

HAPI-C established connections with DYSS, a radio station under GMA's regional Visayas network (RGMA) during the 1st Cebu NGO Summit on December 06, 2011. HAPI-C was given the opportunity to guest in their radio program to talk about hemophilia. This awareness campaign became somewhat of a national level as the scope of broadcasting is from certain parts of Luzon (northern Philippines), all of the Visayas (central Philippines), and certain parts of Mindanao (southern Philippines). 

A total of 1 hour duration of air time was dedicated to hemophilia awareness and HAPI-C. The program was hosted by Ms. Leslie, regular host of DYSS A.M. radio station. First part was a “text game” (promo conducted by radio program) question: What is your understanding of hemophilia? The listener/participant who texted the best answer gets PhP100.00 worth of top-up credit from the station/radio program. Shortly after was a broadcasting of texters’ answers on what they think hemophilia is. 

 

 

For about 40 minutes there was an interview about hemophilia FAQ’s discussed by HAPI-C volunteers: Ms. Mary Ann Navasquez (President), Mrs. Anges Co (Contact Person), Mr. Reymart Balderas (volunteer), and Mr. Edwardson Co (volunteer). The volunteers answered queries send via text messages from the listeners.

At the end of the program, the text promo winner/best answer was picked by HAPI-C.

HAPI-C at the 1st Cebu NGO Summit

At the Eduardo Aboitiz Development Studies Center on December 06, 2011, HAPI-C attended the 1st ever general assembly of all the NGO (non-government organizations) from the Cebu province. With Kaabag Sa Subgu as event organizer/coordinator, over 150 representatives from their various foundations, associations, centers, and movements attended.

The first part of the summit was a speech by Sec. Jesse Robredo from the Dept. of Interior and Local Government. As the former mayor of Naga city, he gave a speech about the growth and development a province by urbanization. He also cited the importance of the NGOs' voices in these changes.

Later, Prof. Felisa Etimadi of UP Cebu also gave a speech about her many experiences in working with various NGO's in Cebu. Part of the speech was a lecture on how to work more efficiency as NGOs.

 

 

After the lunch break the NGO's were divided into 3 conference rooms according to each organization's main concerns and interests; Urban and Rural Livability, Sustainable Development, and Human Development.
For the Human Development Interests groups, Edwardson Co from HAPI-C was a speaker for the program and presented about hemophilia in the Philippines and also about HAPI-C.

 

 

An open forum followed.

 

 

HAPI-C was able to establish connections with DYSS A.M. Radio and had offered for guesting in their program on December 11, 2011. An affiliate program also offered local TV broadcasting for hemophilia awareness, scheduled in January 2012.

All the NGOs later returned to the main discussion hall to culminate the entire day's activity.

 

 

CHRISTMAS PARTY 2011

HAPI-C celebrated its annual Christmas Party for the hemophilia community on December 04, 2011 at a new venue, the gymnasium at the Perpetual Succour Hospital.

More than 300 members gathered for the annual Christmas party - hemophilia patients, parents, siblings, and loved ones coming from Cebu and from the other regions in Visayas (central Philippines), and Mindanao (southern Philippines).

 

It started with a Catholic mass presided by Rev. Donald Kill.

After the opening remarks by Sr. Lydia Merino, a short tribute slideshow/speech dedicated to our late president Bobby Chua followed.

 

A video documentary on "Hemophilia and Physical Therapy" in Philippine setting followed. It is a 1-hour case study video on a hemophilia patient with hemophilic arthropathy undergoing physical rehabilitation. The purpose of the video was to educate the hemophilia community that factor replacement (infusion) alone cannot  resolve bleeding episodes esp. chronic bleeds, and that maintaining proper exercise can help reduce the frequency of bleeds.

A Factor Assay Program was offered by the Phil. Hemophilia Foundation from Manila c/o Ms. Lorena Santos – 44 suspected patients were tested. Some of the tested patients were siblings and relatives of diagnosed hemophilia patients, others were previously untested patients from referrals by doctors. Later, Dr. Lynda Mae Lepatan arrived and also volunteered to partake in the Factor Assay program.

After lunch break,

 

 

Several intermissions followed, such as song and dance numbers from hemophilia patients themselves, their siblings, and even some of their friends.

 

 

Play Therapy session followed. HAPI-C volunteers taught children about factor infusion by using stuffed toys as characters playing a dialogue.

 

After that, ice cream and stuffed toys (donations received by Fr. Kill) were given away to children.

 

 

 

Lastly, the Save One Life distribution for the beneficiaries followed. It was the 3rd quarterly distribution for the 2011 funding.

 

 

Merry Christmas in advance to everyone!

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